MORE RESOURCES

Looking to connect with a care partner organization?

The following is a list of patient support groups that can be a resource for people and families with MPS I.

  • Carolinas Cord Blood Bank

  • CLIMB (Children Living With Inherited Metabolic Diseases)

  • Every Life Foundation

  • Genetic Alliance

  • Global Genes

  • The MAGIC Foundation

  • The National Center for Biotechnology Information (NCBI)

  • National Institutes of Health Genetic and Rare Disease Information Center (GARD)

  • The National MPS Society

  • The National Organization for Rare Disorders (NORD)

  • National Society of Genetic Counselors, Inc.

This listing is provided as a resource only and does not constitute an endorsement by Sanofi of any particular organization or its programming. Additional resources on this topic may be available and should be investigated. Sanofi does not review or control the content of non-Sanofi websites.

CLIMB, Children Living With Inherited Metabolic Diseases; GARD, Genetic and Rare Diseases Information Center; MPS I, mucopolysaccharidosis type I; NCBI, National Center for Biotechnology Information; NORD, National Organization of Rare Disorders.

LEARN ABOUT MPS I REGISTRY