CareConnectPSS Personalized Support Services

CareConnectPSS provides personalized support services to people with MPS I

  • CareConnectPSS represents Sanofi’s more than 35-year commitment to support the rare disease community
  • CareConnectPSS aims to partner with patients, caregivers, and family members to help solve challenges related to living with a rare disease
  • CareConnectPSS is designed to support each patient’s unique journey through dedicated Case Managers and Patient Education Liaisons (PELs)

How can your PEL help?

Medical Support

Disease Education

Provides in-person or virtual disease and treatment education to you, your family, and others (e.g., schools and employers)

Inheritance pattern

Understanding Inheritance

Can help you understand how the disease is passed on in families and complete a medical family tree, if you are interested

Subject Expertise

Lysosomal Storage Disorders Expertise

Has background in nursing and/or genetic counseling

International Support

Local Support

Is regionally based

How can your Case Manager help?

Personalized Support

Personalized Support for Reimbursement and Access

Is your primary point of contact at Sanofi

Care Coordination

Care Coordination

Provides care coordination to support you and your healthcare team

Insurance Coverage

Insurance Coverage

Offers expertise in health insurance and navigating the healthcare system

Financial Assistance

Financial Assistance

Assists with how to handle
out-of-pocket costs or if you do not have insurance

The CareConnectPSS team is just a phone call or email away

Talk to your CareConnectPSS team between 8 am and 6 pm, EST Monday–Friday:

1-800-745-4447 (Option 3) or 617-768-9000 (Option 3)

or email us at

For more information, visit us at

MPS I, mucopolysaccharidosis type I; PEL, patient education liaison; PSS, personalized support services.