The issues presented by MPS are a lifelong challenge for many patients and their families. Over a period of years, MPS I disease may present a variety of issues to manage, and every person will likely have a different experience.
This section provides suggestions that may help you:
We encourage you to tailor the ideas here and adopt them in a way that works for you and your family.
MPS I is part of the mucopolysaccharidoses (MPS) family, a group of inherited diseases, each caused by accumulation of various glycosaminoglycans (GAGs) in the lysosomes. The exact GAGs that accumulate are different in each case. MPS diseases include seven sub-types and although each of the disorders can cause a variety of different symptoms, many of the diseases share similar symptoms, such as corneal clouding, short stature, and joint stiffness.