You should discuss the risks and benefits of any management options or procedure with your physician.
Since MPS I is a multi-systemic disease, care of an MPS I patient can involve many specialists. Patients with MPS I may require supplemental oxygen, continuous positive airway pressure, or tracheostomy for breathing difficulties. Surgery may be necessary for spinal cord compression, hernia repair, carpal tunnel syndrome, or heart valve replacement. Physical therapy can help with joint stiffness.
May 15th is International MPS Awareness Day. Join Sanofi Genzyme as we support raising awareness of MPS disease disorders and honoring the individuals and families who are affected.