Medical Information

Provider resources

Sanofi’s Medical Information Department can provide information on diagnostic testing, pharmacovigilance/safety, and MPS I disease.

Please call 8 AM until 6 PM EST, Monday through Friday:

1-800-745-4447, option 2 (toll-free)/
1-617-768-9000, option 2

Patient Resources

The educational websites, professional medical organizations, national disease groups, and patient assistance programs listed below are all dedicated to supporting MPS I patients. Use these resources to expand your knowledge of MPS I and help your patients, their families, and caregivers gain a better understanding of MPS I.

This listing is provided as a resource only and does not constitute an endorsement by Sanofi of any particular organization or its programming. Additional resources on this topic may be available and should be investigated. Sanofi does not review or control the content of non-Sanofi websites.

Educational Resources

Resources for your patients:

  • Carolinas Cord Blood Bank

  • CLIMB (Children Living With Inherited Metabolic Diseases)

  • Every Life Foundation

  • Genetic Alliance

  • Global Genes

  • The MAGIC Foundation

  • The National Center for Biotechnology Information (NCBI)

  • National Institutes of Health’s Genetic and Rare Diseases Information Center (GARD)

  • The National MPS Society

  • The National Organization for Rare Disorders (NORD)

  • National Society of Genetic Counselors

  • The Ryan Foundation

 

Professional Organizations

The following professional organizations are dedicated to genetic diseases:

  • American College of Medical Genetics and Genomics (ACMG)
  • American Society of Human Genetics (ASHG)
  • The European Society of Human Genetics
  • International Society of Nurses in Genetics (ISONG)
  • National Society of Genetic Counselors (NSGC)
  • Society for Inherited Metabolic Disorders (SIMD)
  • Society for the Study of Inborn Errors of Metabolism (SSIEM)

 

Patient Support Groups

A list of patient support groups is provided below:

  • Carolinas Cord Blood Bank
  • CLIMB (Children Living With Inherited Metabolic Diseases)
  • Every Life Foundation
  • Genetic Alliance
  • Global Genes
  • The MAGIC Foundation
  • The National Center for Biotechnology Information (NCBI)
  • National Institutes of Health’s Genetic and Rare Diseases Information Center (GARD)
  • The National MPS Society
  • The National Organization for Rare Disorders (NORD)
  • National Society of Genetic Counselors
  • The Ryan Foundation

 

Patient website

Sanofi is committed to assisting you in educating your patients about MPS I. The website below provides information on MPS I for patients and caregivers.

Visit patient website
Improve your understanding of MPS I

MPS, mucopolysaccharidosis

MAT-US-2205123-v1.0-10/2022 Last Updated: October 2022