Related Links

The following links are provided as additional resources for information on rare diseases, including MPS I:

• Carolinas Cord Blood Bank provides information regarding Umbilical Cord Blood Transplantation.
• CLIMB (Children Living with Inherited Metabolic Diseases) provides information, advice, and support on over 550 metabolic diseases.
• Family Village is a service for families that integrates information, resources, and communication opportunities for persons with cognitive and other disabilities.
• Genetic Alliance provides information and resources regarding genetic diseases.
• Health on the Net Foundation offers reliable online medical and health information for laypersons and medical practitioners.
• Join the Search is a nationwide campaign launched by the National MPS Society that urges parents, physicians and the American public to help identify children with MPS in order to drive earlier diagnosis and to ensure optimal disease management.
• The National Center for Biotechnology Information (NCBI) is a searchable website that includes information on genetic diseases.
• National Institutes of Health Office for Rare Disorders (ORD) provides information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
• National Marrow Donor Program (NMDP) facilitates unrelated marrow and blood stem cell transplants for patients with life-threatening diseases who do not have matching donors in their families.
• The National Organization of Rare Diseases (NORD) provides resources regarding rare diseases.
• National Society of Genetic Counselors, Inc. provides information on the genetic counseling profession and its guiding principles.