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Download Materials

The more you know about MPS I disease, the bigger the role you may play in maintaining your health and your lifestyle. Download the following educational materials for yourself or distribute them to your or your child’s doctors, teachers, and case managers.

Please note that you need Adobe Acrobat Reader to view PDF files. If you don't have it, you can download it for free from the Adobe website:

MPS I Journal
The MPS I Journal has been designed for you, to help you organize your schedule and records for monitoring tests, supportive care, and medications. The journal includes space to record your thoughts, observations, and questions.
Did you know...
Genetic counselors are health professionals who are trained to help families understand genetic disorders such as MPS I disease. A genetic counselor can help you determine if you are a carrier of a gene defect that causes MPS I and can provide valuable information and support for family planning. Visit the European Society of Human Genetics or the National Society of Genetic Counselors to learn more.
Watch Video
Alicia is a 16-year-old with MPS I who was diagnosed 10 years ago. Watch Alicia’s story to find out how she is handling life as a teenager living with MPS I.
Watch the Video
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