Patients and Caregivers

If you have just learned that you, your child, a relative, or friend has MPS I disease, this may be the first time you have heard of this disorder. This website is designed to educate you about MPS I disease and to help you access resources within the MPS I community.

Visit the About MPS I section to learn all about MPS I disease, including its causes, signs and symptoms, and how it is diagnosed. Find out about therapies in Treatment Options or go to Patient Stories to hear from other MPS I patients who have shared similar experiences. Read helpful tips on communicating with your doctor, employer, or other family members in Living with MPS I and search for related links, and support groups.

What you learn on this website may help you discuss MPS I disease more comfortably with your family, your physician and other healthcare professionals.