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MPSI Disease Treatment Information for Patients and FamiliesMPSI Disease Treatment Information for Health Care Providers
Patients & Care Givers Overview
About MPS I
Treatment Options
Patient Stories
Living with MPS I
Explaining MPS I
MPS I and the Workplace
Talking to Your Doctor
Traveling
Parental Support
The MPS I Registry
Resources & Support

Traveling

Check with your doctor before traveling. Depending on the severity of an individual’s MPS I, they may have limited mobility and may need to travel with medications, devices, and caregivers. Before any trip, make sure that everything you need can be brought with you or will be available at the new location.

If you are flying, call the airline in advance to make sure they can accommodate your needs and to discuss their additional services for passengers with disabilities or medical conditions.

If you are currently taking various treatments or medications for your disease, you can investigate obtaining treatment or other medical care in other locations, particularly if you are traveling for any extended time and would miss treatments or medications recommended by your doctor.

Did you know...
Genetic counselors are health professionals who are trained to help families understand genetic disorders such as MPS I disease. A genetic counselor can help you determine if you are a carrier of a gene defect that causes MPS I and can provide valuable information and support for family planning. Visit the European Society of Human Genetics or the National Society of Genetic Counselors to learn more.
Watch Video
Bryce, six years old, was diagnosed with an attenuated form of MPS I two years ago. Find out how Bryce and his family are coping with the disease and how the whole family works together to support each other.
Watch the Video
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