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Support Groups
Patient societies have been formed around the world to provide information and support to patients and families of patients with MPS I. The following links and contact information to patient societies are provided as additional resources for information on MPS I:
Australia
The Australian MPS Society
www.mpssociety.org.au
Austria
The Austrian MPS Society
www.mps-austria.at
Belgium
BOKS
www.boks.be
Brazil
The Brazilian MPS Society
www.mpsbrasil.org.br
Canada
The Canadian MPS Society
www.mpssociety.ca
Czech Republic
Society for MPS
www.mukopoly.cz
France
Vaincre les Maladies Lysosomales (VML)
www.vml-asso.org
Germany
Gesellschaft für Mukopolysaccharidosen
www.mps-ev.de/
Hungary
Mukopoliszacharidózis Társág
Email: hegybiro@elgi.hu
Ireland
Irish Mucopolysaccharide Society
Israel
Department of Human Genetics,
Hadassah Medical Center
Italy
Associazione Italiana per le Mucopolisaccaridosi e Malattie Affini (ONLUS)
www.mucopolisaccaridosi.it
The Netherlands
Vereniging voor kinderen met stofwisselingsziekten
www.stofwisselingsziekten.nl/vks/
New Zealand
Lysosomal Diseases in New Zealand (LDNZ)
www.ldnz.org.nz
Norway
Frambu senter for sjeldne funksjonshemninger
Email: info@frambu.no
Poland
Stowarzyszenie Przyjaciól i Rodzin Dzieci Chorych na Mukopolisacharydoze
Romania
Fundatia Romana Pentru Boli Lisosomale
Slovak Republic
Department of Pediatrics DFNP
Spain
Asociacion Para Problemas De Crecimiento - A.D.A.C. Andalucia Mucopolisacridosis
Sweden
Nationellt informationscentrumför smĺ och mindre kända handikappgrupper
Switzerland
Verein Geselischaft Fur Mukoploysaccaridosen
Toessriederenstr 74
8193 Eglisau
United Kingdom
The Society for Mucopolysaccharide Diseases
www.mpssociety.co.uk
United States
The National MPS Society
www.mpssociety.org |
